Former Secretary of State for Health Lacerda Sales stated this in an interview with the newspaper. To express, who learned about the case of the Portuguese-Brazilian twins at a meeting on November 7, 2019 with Nuno Rebelo de Sousa, son of the President of the Republic. He also adds that he did not interfere in the planning of the meeting.either by phone or email.
As for the meeting, Lacerda Sales says it served as a “handing out of greetings.”
“I gave him information that I would treat this case like all others, without privileges, because all the formalized processes that reached me signaled different institutions. And there were hundreds of them,” said the former Secretary of State. To express.
Two Portuguese-Brazilian twins received medicine worth four million euros at the Santa Maria hospital.
Two million drugs to treat disabling diseases
Novartis’ Zolgensma was once considered the most expensive drug in the world, costing €2 million in 2019. Currently, the price is lower because it depends on whether the therapy is successful for each child. Zolgensma treats children with spinal muscular atrophy (SMA) type 1, a rare genetic disease that affects one in every 11,000 children. This is a medicine whose mechanism of action is aimed at the cause of the disease. SMA type 1 causes loss of strength, muscle atrophy, progressive paralysis and loss of motor skills, but does not reduce cognitive abilities.